Tieteelliset artikkelit

Abrams, M.S. (2009).The well sibling: Challenges and possibilities. American Journal of Psychotherapy, 63, 305-317.

Akhtar, M., Kennedy, P., Webster, G. & Graham, A. (2012). What about us? Children's experriences of living with a sibling with spinal cord injury. J Pediatr Rehabil Med. 2012;5(4):301-13.

Aksoy, A. & Bercin Yildirim, G. (2008). A study of the relationships and acknowledgement of the non-disabled children with disabled siblings. Educational Sciences: Theory and Practice, 8, 769-779.

Alderfer, M.A., Long, K.A., Lown, E.A., Marsland, A.L., Ostrowski, N.L., Hock, J.M. & Ewing, L.J. (2010). Psychosocia adjustment of siblings of children with cancer: a systematic review. Psychooncology. Aug;19(8):789-805.

Aronson, S. (2009). Am I my brother’s keeper? Challenges for siblings of autistic children. Journal of Infant, Child, and Adolescent Psychotherapy, 8, 49-56.

Bailey, D.B., Bruder, M.B., Hebbeler, K., Carta, J., Defosset, M., Greenwood, C. & Barton, L. (2006). Recommended outcomes for families of young children with disabilities. Journal of Early Intervention, 28, 227-251.

Baker, M.J. (2000).Incorporating the thematic ritualistic behaviors of children with autism into games:Increasing social play interactions with siblings.Journal of Positive Behavior Interventions, 2, 66-84.

Ballard, K.L. (2004). Meeting the needs of siblings of children with cancer. Pediatr Nurs 2004 Sep-Oct;30(5):394-401.

Barak-Levy, Y., Goldstein, E. & Weinstock, M. (2010).Adjustment characteristics of healthy siblings of children with autism.Journal of Family Studies, 16, 155-164.

Barnett, R. A., & Hunter, M. (2011). Adjustment of siblings of children with mental health problems: Behavior, self-concept, quality of life, and family functioning. Journal of Child and Family Studies. Advance online publication. DOI 10.1007/s10826-011-9471-2.

Barr, J. & McLeod, S. (2010). They never see how hard it is to be me: Siblings’ observations of strangers, peers, and family. International Journal of Speech-Language Pathology, 12, 162-171.

Barr, J., McLeod, S. & Daniel, G. (2008). Siblings of children with speech impairment: Cavalry on the hill. Language, Speech, and Hearing Services in Schools, 39, 21-32.

Barrerra, M., Chung, J., Greenberg, M. & Fleming, C. (2002). Preliminary investigation of a group intervention for siblings of pediatric cancer patients. Children’s Health Care, 31, 131-142.

Barrett, P.M., Fox, T. & Farrell, L.J. (2005).Parent-child interactions with anxious children and with their siblings: An observational study.Behaviour Change, 22, 220-235.

Barrett, P., Healy-Farrell, L., & March, J. (2004). Cognitive-behavioral family treatment of childhood obsessive compulsive disorder: A controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry,43, 46-62.

Barry, L.M. & Singer, G.H.S. (2001).A family in crisis:Replacing the aggressive behavior of a child with autism toward an infant sibling.Journal of Positive Behavior Interventions, 3, 28-38.

Bass, J.D. & Mulick, J.A. (2007). Social play skill enhancement of children with autism using peers and siblings as therapists. Psychology in the Schools, 44, 727-735.

Bat- Chava, Y. & Martin, M. (2002).Sibling relationships of deaf children:The impact of child and family characteristics.Rehabilitation Psychology, 47, 73-91.

Beaulieu MJ. [The forgotten child: living in the shadow of a chronically ill sibling]. (2012). Perspect Infirm. May-Jun;9(3):23-5. French.

Bellin, M.H. & Kovacs, P.J. (2006). Fostering resilience in siblings of youth with a chronic health condition: A review of the literature.Health and Social Work, 31, 209-216.

Bellin, M. & Rice, K. (2009). Individual, family, and peer factors associated with the quality of sibling relationships in families of youths with spina bifida.Journal of Family Psychology, 23, 39-47.

Benderix, Y. & Sivberg, B. (2007).Siblings experiences of having a brother or sister with autism and mental retardation: A case study of 14 children from 5 families.Journal of Pediatric Nursing, 22, 410-418.

Benson, P. & Karlof, K. (2008). Child, parent, and family predictors of latter adjustment in siblings of children with autism. Research in Autism Spectrum Disorders, 2, 583-600.

Ben-Yizhak, N., Yirmiya, N., Seidman, I., Alon, R., Lord, C. & Sigman, M. (2011). Pragmatic language and school related linguistic abilities of siblings of children with autism.Journal of Autism and Developmental Delays.Advance online publication. DOI 10.1007/s10803-010-1096-6.

Beyer, J. (2009). Autism spectrum disorders and sibling relationships: Research and strategies. Education and Training in Developmental Disabilities, 44, 444-452.

Blacher, J., Neece, C. & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507-513.

Bowie L. (2012). A journey through disability: a sibling's perspective. Pediatr Nurs. Nov-Dec;38(6):300-1, 326.

Bowman, S., Alvarez-Jimenez, M., Wade, D., McGorry, P. & Howie, L. (2014). Early Interv Psychiatry. 2014 Aug;8(3):269-75.

Brennan, C., Hugh-Jones, S. & Aldridge, J. (2013). Paediatric life-limiting conditions: coping and adjustment in siblings. J Health Psychol. Jun;18(6):813-24.

Branstetter, J.E., Domian, E.W., Graff, J.C. & Piamjariyakul, U. (2008).Communication themes in families of children with chronic conditions.Issues in Comprehensive Pediatric Nursing, 31, 171-184.

Bruder, M.B. (2000). Family-centered early intervention: clarifying our values for the new millennium.Topics in Early Childhood Special Edcuation, 20, 105-122.

Bryant, L., Hewison, J. D. & Green, J. M. (2005).Attitudes towards prenatal diagnosis and termination in women who have a sibling with Down syndrome.Journal of Reproductive and Infant Psychology, 23, 181-198.

Burke, P. (2010). Brothers and sisters of disabled siblings: The experience of disability by association.British Journal of Social Work, 40, 1681-1699.

Burke, P. & Montgomery, S. (2000).Siblings of children with disabilities: A pilot study.Journal of Intellectual Disabilities, 4, 227-236.

Canary, H. (2008). Negotiating disability in families: Constructs and contradictions. Journal of Applied Communication, 36, 437-458.

Carpenter, B. (2000).Sustaining the family: Meeting the needs of families of children with disabilities.British Journal of Special Education, 27, 135-144.

Carr, J. (2004). Families of 30-35-year olds with Down syndrome. Journal of Applied Reesarch in Intellectual Disabilities, 18, 75-84.

Cassel, T.D., Messinger, D.S., Ibanez, L.B., Haltigan, ,J.D., Acosta, S.I.. & Buchman, A.C. (2007). Early social and emotional communication in infant siblings of children with autism specgrum disorders: An examination of the broad phenotype.Journal of Autism and Developmental Disorders, 37, 122-132.

Castronia, L.L. & Negri, L.M. (2011). The inclusion of siblings in social skills training groups for boys with Asperger Syndrome.Journal of Autism and Developmental Disorders, 41, 73-81.

Cebula K.R. (2012). Applied behavior analysis programs for autism: sibling psychosocial adjustment during and following intervention use. J Autism Dev Disord. May;42(5):847-62.

Chambers, C.R. (2007).Siblings of individuals with disabilities who enter careers in a disability field. Teacher Education and Special Education, 30, 115-127.

Chambers, C.R., Hughes, C. & Carter, E.W. (2004). Parent and sibling perspectives on the transition to adulthood. Education and Training Developmental Disabilities, 39, 79-94.

Choi, H. & Van Riper, M. (2013). Siblings of children with Down syndrome: an integrative review. MCN Am J Matern Child Nurs. Mar;38(2):72-8.

Choi, H, Van Riper, M. (2014). Maternal perceptions of sibling adptation in Korean families of children with Down syndrome. J Intellect Disabil Res. Oct;58(10):962-77.

Christiansen, L., Hutman, T., Rozga, A., Young, G.S., Ozonoff, S., Rogers, S.J.,… & Sigman, M. (2010). Play and developmental outcomes in infant siblings of children with autism.Journal of Autism and Developmental Disorders, 40, 946-957.

Chuthapisith, J., Ruangfaragonon, N., Sombuntham, T. & Roongpraiwan, R. (2007). Language development among the siblings of children with autistic spectrum disorder. Autism, 11, 149-160.

Constantino, J.N., Zhang, Y., Frazier, T., Abbachhi, A.N. & Law, P. (2010).Sibling recurrence and the genetic epidemiology of autism.American Journal of Psychiatry, 167, 1349-1356.

Conway, S. & Meyer, D. (2008). Developing support for siblings of young people with disabilities.Support for Learning, 23, 113-117.

Cox, A., Marshall, E., Mandleco, B. & Olsen, S. (2003). Coping responses to daily life stressors of children who have a sibling with a disability. Journal of Family Nursing, 9, 397-413.

Cunningham, C.C., Glenn, S. & Fitzpatrick, H. (2000).Parents telling their offspring about Down syndrome and disability.Journal of Applied Research in Intellectual Disabilities, 13, 47-61.

Cuskelly, M. & Gunn, P. (2006). Adjustment of children who have a sibling with Down syndrome: Perspectives of mothers, fathers, and children.Journal of Intellectual Disability Research, 50, 917-926.

Cuskelly, M. & Gunn, P. (2003). Sibling relationships of children with Down syndrome: Perspective of mothers, fathers, and siblings. American Journal of Mental Retardation, 180, 234-244.

D’Arcy, F., Flynn, J., McCarthy, Y., O’Connor, C. & Tierney, E. (2005). Sibshops: An evaluation of an interagency model.Journal of Intellectual Disabilities, 9, 43-57.

Davys, D., Mitchell, D. & Haigh, C. (2010). Futures planning, parental expectations, and sibling concern for people who have a learning disability.Journal of Intellectual Disabilities, 14, 167-183.

Del’Homme, M., Kim, T.S., Loo, K.S., Yung, M.H. & Smalley, S.L. (2007). Familial association and frequency of learning disabilitiy in ADHD sibling pair families.Journal of Abnormal Child Psychology, 35, 55-62.

Dew, A., Balandin. S. & Llewellyn, G. (2008). The psychological impact on siblings of people with lifelong physical disability: A review of the literature.Journal of Developmental and Physical Disabilities, 20, 485-507.

Dew, A., Llewellyn, G. & Balandin, S. (2004). Post-parental care: a new generation of sibling-carers.Journal of Intellectual and Developmental Disability, 29, 126-129.

Dodd, L.W. (2004). Supporting the siblings of children of young children with disabilities. British Journal of Special Education, 31, 41-49.

Dodd, S., Hupp, S.D.A., Jewell, J.D. & Krohn, E. (2008). Using parents and siblings during a social story intervention for two children diagnosed with PDD-NOS.Journal of Developmental and Physical Disabilities, 20, 217-229.

Doody, M., Hastings, R., O’Neill, S. & Grey, I. (2010). Siblings relationships in adults who have siblings with or without intellectual disabilities. Research in Developmental Disabilities, 31, 224-231.

Dorris, L., Espie, C.A.E., Knott, F. & Salt, J. (2004).Mind-reading difficulties in the siblings of people with Asperger’s syndrome: evidence for a genetic influence in the abnormal development of a specific cognitive domain.Journal of Child Psychology, Psychiatry, 45,412-418.

Dunst, C.J., Trivette, C.M. & Hamby, D.W. (2007).Meta-analysis of family centered help-giving practices research. Mental Retardation and Developmental Disabilities, 13, 370-378.

Dykens, P. (2005). Happiness, well-being, and character strengths:Outcomes for families and siblings of persons with mental retardation.Mental Retardation, 43, 360-364.

Dyson, L.L. (2003). Children with learning disabilities within the family context: A comparison with siblings in global self-concept, academic self-perception, and social competence.Learning Disabilities Research and Practice, 18, 1-9.

Evans, J., Jones, J. & Mansell, I. (2001). Supporting siblings: Support groups for brothers and sisters of children with learning disabilities and challenging behavior. Journal of Intellectual Disabilities, 5, 69-78.

Ferraioli, S.J.,Hansford, A. & Harris, S.L. (2011). Benefits of including siblings in the treatment of autism spectrum disorders.Cognitive and Behavioral Practice.Advance online publication.DOI: 10.1016/j.cbora.2010.05.005.

Findlar, L. & Vardi, A. (2009). Psychological growth among siblings of children with and without intellectual disabilities. Intellectual and Developmental Disabilities, 47, 1-12.

Flaton, R.A. (2006). “Who would I be without Danny?” Phenomoenological case study of an adult sibling.Mental Retardation, 44, 135-144.

Fleitas, J. (2000). When Jack fell down…Jill came tumbling after. MCN the American Journal of Maternal Child Nursing, 25, 267-273.

Floyd, F., Harter, K. & Costigan, C. (2004). Family problem solving with children who have mental retardation. American Journal on Mental Retardation, 109, 507-524.

Floyd, F., Purcell, S., Richardson, S. & Kuperschmidt, J. (2009). Sibling relationship quality and social functioning of children and adolescents with intellectual disabilities. American Journal on Intellectual and Developmental Disabilities, 114, 110-127.

Fox, T.L., Barrett, P.M. & Shortt, A.L. (2010). Sibling relationships of anxious children: A preliminary investigation. Clinical Child and Adolescent Psychology, 31, 375-383.

Gabovitch, E. & Curtin, C. (2009). Family-centered care for children with autism spectrum disorders: A review.Marriage and Family Review, 45, 469-498.

Gamliel, I., Yirmiya, N. & Sigman, M. (2007). The development of young siblings of children with autism from 4 to 54 months.Journal of Autism and Developmental Disorders, 37, 171-183.

Gamliel, I., Yirmiya, N., Haffe, D. H., Manor, O. & Sigman, M. (2009). Developmental trajectories in siblings of children with autism: Cognition and language from 4 months to 7 years.Journal of Autism and Developmental Disorders, 39, 1131-1144.

Garon, N., Bryson, S.E., Zwaigenbaum, L., Smith, I.M., Brian, J., Roberts, W. & Szatmari, P. (2009). Temperament and its relationship to autistic symptoms in a high-risk infant sib cohort.Journal of Abnormal Child Psychology, 37, 59-78.

Gass, K., Jenkins, J. & Dunn, J. (2007). Are sibling relationships protective? A longitudinal study.Journal of Child Psychology and Psychiatry, 48, 167-178.

Giallo, R. & Gavidia-Payne, S. (2008). Evaluation of family-based intervention for siblings of children with disability or chronic illness. Australian e-Journal for the Advancement of Mental Health, 7(2), 1-13.

Giallo, R. & Gavidia-Payne, S. (2006). Child, parent, and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research, 50, 937-948.

Goudie, A., Havercamp, S., Jamieson, B. & Sahr, T. (2013). Assessing functional impairment in siblings living with children with disability. Pediatrics. Aug;132(2):e476-83.

Granat, T., Nordgren, I., Rein, G. & Sonnander, K. (2012). Group intervention for siblings of children with disabilities: a pilot study in a clinical setting. Disabil Rehabil. 2012;34(1):69-75.

Greef, A. & van der Walt, K. (2010).Resilience in families with an autistic child.Education and Training in Autism and Developmental Disabilities, 45, 347-355.

Griffith, G.M., Hastings, R.P. & Petalas, M.A. (2014). Farthers' and mothers' rating of behavioral and emotional problems in siblings of children with autism spectrum disorder. J Autism Dev Disord. May;44(5):1230-5

Grissom, M. O. & Borkowski, J. (2002). Self-efficacy in adolescents who have siblings with or without disabilities. American Journal of Mental Retardation, 107, 79-90.

Guite, J., Lobato, D., Kao, B. & Plante, W. (2004). Discordance between sibling and parent reports of the impact of chronic illness and disability of siblings. Children’s Health Care, 33(1), 77-92.

Hames, A. (2008). Sibling’s understanding of learning disability: A longitudinal study. Journal of Applied Research in Intellectual Disabilities, 28, 491-501.

Hames, A. (2005). How younger siblings of children with learning disabilities understand the cognitive and social implications of learning disabilities. European Journal of Special Needs Education, 20(1), 3-19.

Hancock, L. (2011). The camp experience for siblings of pediatric cancer patiens. J Pediatr Oncol Nurs. 2011 May-Jun;28(3):137-42.

Hannah, M.E. & Midlarsky, E. (2005).Helping by siblings of children with mental retardation. American Journal on Mental Retardation, 110, 87-99.

Harland, P. & Cuskelly, M. (2000). The responsibilities of adult siblings of adults with dual sensory impairments. International Journal of Disability Development and Education, 47, 293-307.

Hasman, L. & Zafron, M.L. (2010). An analysis of online resources for parents, siblings, and other caregivers of adults with intellectual disabilities.Journal of Consumer Health on the Internet, 14, 33-41.

Hastings, R. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities.Journal of Autism and Developmental Disorders, 37, 1485-1492.

Hastings, R. (2003). Brief report: Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33, 99-104.

Hastings, R.P. (2003). Behavior adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 2, 141-150.

Hastings, R. (2014). Children and adolescents who are the siblings of children with intellectual disabilities or autism: Research evidence. Cerebra Chair of Family Research University of Warwick. http://www.sibs.org.uk/wp-content/uploads/2015/09/...

Hastings, R.P. & Taunt, H.M. (2002). Positive perceptions in families of children with developmental disabilities.American Journal on Mental Retardation, 107, 116-127.

Hatfield, A.B. & Lefley, H.P. (2005).Future involvement of siblings in the lives of persons with mental illness.Community Health Journal, 41, 327-338.

Haukeland, Y., Fjermestad, K., Mossige, S & Vatne, T. (2015). Emotional Experiences Among Siblings of Children With Rare Disorders. Journal of Pediatric Psychology, 2015, 1–9 doi: 10.1093/jpepsy/jsv022.

Hebbler, K., Spiker, D., Bailey, D., Scarborough, A., Mallik, S., Simeonsson, R.…. & Nelson, L. (2007) Early intervention for infants and toddlers with disabilities and their families: Participants, services, and outcomes. Final report of the National Early Intervention Longitudinal Study (NEILS). Retrieved February, 2011, fromhttp://www.sri.com/neils/pdfs/NEILS_Report_02_07_F...

Heller, T. & Caldwell, J. (2006).Supporting aging caregivers and adults with developmental disabilities in future planning.Mental Retardation, 44, 189-202.

Heller, T. & Keiling Arnold, C. (2010). Siblings of adults with developmental disabilities: Psychosocial outcomes, relationships, and future planning. Journal of Policy and Practice in Intellectual Disabilities, 7(1)-16-25.

Heller, T. & Kramer, J. (2009). Involvement of adult siblings of persons with developmental disabilities in future planning. Intellectual and Developmental Disabilities, 47, 208-219.

Help for siblings. New continuing education section: "Specialist for siblings of ill and/or handicapped persons". [No authors listed]. (2014). Kinderkrankenschwester. Apr;33(4):139-40. German.

Hodapp, R.M. (2007).Families of persons with Down syndrome: New perspectives, findings, and research and service needs.Mental Retardation and Developmental Disabilities, 13, 279-287.

Hodapp, R.M., Glidden, L.M. & Kaiser, A.P. (2005). Siblings of persons with disabilities: Toward a research agenda.Mental Retardation, 43, 334-338.

Hodapp, R.M., Urbano, R.C. & Burke, M.M. (2010). Adult female and male siblings of persons with disabilities: Findings from a national survey.Intellectual and Developmental Disabilities, 48, 52-62.

Hodapp, R.M. & Urbano, R. (2007). Adult siblings of individuals with Down syndrome vs. with autism: Findings from a large scale study. Journal of Intellectual Disability Research, 51, 1019-1028.

Hollidge, C. (2001). Psychological adjustment of siblings to a child with diabetes. Health and Social Work, 26(1), 15-25.

Hollidge, C. (2000). Well children living with diabetic siblings: Implications for emotional adjustment using the psychodynamic framework. Psychoanalytic Social Work, 7, 49-74.

Hudson, J.L. & Rapee, R.M. (2002). Parent-child interactions in clinically anxious children and their siblings. Journal of Clinical Child and Adolescent Psychology, 31, 548-555.

Iverson, J.A. & Wozniak, R.H. (2007).Variation in vocal-motor development in infant siblings of children with autism.Journal of Autism and Developmental Disorders, 37, 158-170.

Ivey, J.K. & Ward, A.K. (2010). Dual familial roles: An Asperger’s syndrome case. Teaching Exceptional Children Plus, 6, 2-10.

Jewell, T.C. & Stein, C.J. (2002). Parental influence on sibling caregiving for people with severe mental illness.Community Mental Health Journal, 38, 17-33.

Jones, K. & Schwartz, I.S. (2006). Siblings, peers, and adults: Differential effects of models for children with autism. Topics in Early Childhood Special Education, 24, 187-198.

Jones, K., Welsh, R.K., Glassmire, D.M. & Tavegia, B.D. (2006). Psychological functioning in siblings of children with attention deficit hyperactivity disorder.Journal of Children and Family Studies, 15, 757-763.

Kalmanson, B. (2009). Echoes in the nursery: Insights for treatment of early signs of autism in a baby sibling.Journal of Infant, Child, and Adolescent Therapy, 8, 40-48.

Kaminsky, L. & Dewey, D. (2001). Sibling relationships in children with autism. Journal of Autism and Developmental Disorders, 31. 399-410.

Kaminsky, L. & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychiatry and Psychology, 43, 225-232.

Kao, B., Romero-Bosch, L., Plante, W. & Lobato, D. (2012). The experiences of Latino siblings of children with developmental disabilities. Child Care Health Dev. Jul;38(4):545-52.

Kao, B., Plante, W. & Lobato, D. (2009). The use of the Impact on Sibling Scale with families of children with chronic illness and developmental disability. Child: Care Health and Development, 35(4), 505-509.

Kilmer, R.P., Cook, J.R., Taylor, C., Kane, S.F. & Clark, L. Y. (2008). Siblings of children with severe emotional disturbances: Risks, resources, and adaptation.American Journal of Orthopsychiatry, 78, 1-10.

Kim. T. & Horn, E. (2010). Sibling-implemented intervention for skill development with children with disabilities.Topics in Early Childhood Special Education, 30, 80-90.

Klein, P., Zarur, S. & Feldman, R. (2003). Meditational behaviors of preschoolers teaching their younger siblings. Infant and Child Development, 12, 233-242 .

Knott, F., Lewis, C. & Williams, T. (2007).Sibling interaction of children with autism: Development over 12 months.Journal of Autism and Developmental Disorders, 37, 1987-1995.

Kresak, K., Gallagher, P. & Rhodes, C. (2009). Siblings of infants and toddlers with disabilities in early intervention. Topics in Early Childhood Special Education, 29(3), 143-154.

Lane, C. & Mason, J. (2014). Meeting the needs of siblings of children with life-limiting illnesses. Nurs Child Young People. Apr;26(3):16-20.

Lardieri, L., Blahcer, J. & Swanson, H. (2000). Sibling relationships and parental stress in families of children with and without learning disabilities. Learning Disability Quarterly, 23, 105-116.

Laufersweiler-Plass, C., Rudnick-Shoeneborn, S., Zerres, K., Backes, M., Lemkuhl, G. & von Gontard, A. (2003). Behavioral problems in children and adolescents with spinal muscular atrophy and their siblings. Developmental Medicine and Child Neurology, 45, 44-49.

Lehna C. (2013). Stigma perspective of siblings of children with a major childhood burn injury. J Am Assoc Nurse Pract. Oct;25(10):557-62.

Levine, C., Halper, D., Peist, A. & Gould, D.A. (2010). Bridging troubled waters: Family caregivers, transitions, and long-term care. Health Affairs, 29(1), 116-124.

Levy-Wasser, N. & Katz, S. (2004). The relationship between attachment style, birth order, and adjustment in children who grow up with a sibling with mental retardation. British Journal of Developmental Disabilities, 99, 89-98.

Lindhout, I., Boer, F., Markus, M. T., Hoogendijk, T. H. G., Maingay, R. & Borst, S. R. (2003). Sibling relationships of anxiety disordered children: A research note. Journal of Anxiety Disorders, 17, 593-601.

Listug-Lunde, L., Zevenbergen, A. & Petros, T. D. (2008). Psychological symptomology in siblings of children with ADHD.Journal of Attention Disorders, 12, 239-247.

Lobato, D. & Kao, B. (2005). Brief report: Family-based group intervention for young siblings. Journal of Pediatric Psychology, 30, 678-682.

Lobato, D. & Kao, B. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27, 711-716.

Lobato, D., Kao, B. & Plante, W. (2005). Latino sibling knowledge and adjustment to chronic disability. Journal of Family Psychology, 19, 625-632.

Lobato, D., Kao, B., Plante, W., Seifer, R., Grullon, E., Cheas, L. & Canino, G. (2011). The psychological and school functioning of Latino siblings of children with intellectual disability. Journal of Child Psychology and Psychiatry, doi:10.1111/j.1469-7610.2010.02357.x

Lock, R.H. & Finstein, R. (2009). Examining the need for autism sibling support groups in rural areas.Rural Special Edcuation Quarterly, 28, 21-30.

Lohrer, S.P., Lukens, E.P. & Thorning, H. (2007). Economic expenditures associated with instrumental caregiving roles of adult siblings of persons with severe mental illness. Community Mental Health Journal, 43, 129-151.

Long K.A., Lobato, D., Kao, B., Plante, W., Grullón, E., Cheas, L., Houck, C. & Seifer R. (2013). Perceptions of emotion expression and sibling-parent emotion communication in Latino and non-Latino white siblings of children with intellectual disabilities. J Pediatr Psychol. Jun;38(5):551-62.

Lukens, E.P., Thorning, H. & Lohrer, S.P. (2002). How siblings of those with severe mental illness perceive services and support.Journal of Psychiatric Practice, 8, 354-364.

Macks, R.J. & Reeve, R.E. (2007).The adjustment of nondisabled siblings of children with autism.Journal of Autism and Developmental Disorders, 37, 1060-1067.

Magill-Evans, J., Darrah, J., Pain, K., Adkins, R. & Kratochvil, M. (2001). Are families with adolescents with cerebral palsy the same as other families?Developmental Medicine and Child Neurology, 43, 466-462.

Mannila, K., Palonen, M. & Åstedt-Kurki, P. (2014). Sisaruus synnynnäisesti sydänvikaisen lapsen ja nuoren perheessä. Tutkiva Hoitotyö, 3.

Mandleco, B., Olson, S.F., Dyches, T. & Marshall, E. (2003). The relationships between family and sibling functioning in families raising a child with a disability. Journal of Family Nursing, 9, 365-396.

Manor-Binyamini, I. & Abu-Ajaj, O. (2012). Coping of siblings of children with developmental disabilities in the Bedouin community. Res Dev Disabil. May-Jun;33(3):825-31.

Marks, S.U., Matson, A. & Barraza, L. (2005).The impact of siblings with disabilities on their brothers and sisters pursuing a career in special education. Research and Practice for Persons with Severe Disabilities, 30, 205-218.

Masi, G., Mucci, M., Favilla, L., Brovendani, P., Millipiedi, S. & Perugi, G. (2003). Temperament in adolescents with anxiety and depressive disorders and in their families. Child Psychiatry and Human Development, 33, 245-259.

Mazaheri, M.M., Rae-Seebach, R.D., Preston, H.E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S. & Packman, W. (2013). The impact of Prader-Willi synrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment. J Intellect Disabil Res. Sep;57(9):861-73.

Mazefsky, C.A., Goin-Kochel, R.P., Riley, B.P. & Maes, H.H. (2008) .Genetic and environmental influences on symptom domains in twins and siblings with autism. Research in Autism Spectrum Disorders, 2, 320-331.

McGraw, L.A. & Walker, A.J. (2007). Meanings of sisterhood and developmental disability: Narratives from white nondisabled siblings.Journal of Family Issues, 28, 474-500.

McMahon, C.R., Malesa, E.E., Yoder, P.J. & Stone, W.L. (2007). Parents of children with autism spectrum disorders have merited concerns about their later-born infants.Research and Practice for Persons with Severe Disabilities, 32, 154-160.

McMahon, M.A., Noll, R.B., Michaud, L.J. & Johnson, J.C. (2001). Sibling adjustment to pediatric traumatic brain injury: A case-controlled pilot study.Journal of Head Trauma and Rehabilitation, 16, 587-594.

McMillan, E. (2005). A parent’s perspective.Mental Retardation, 43, 351-353.

Medean, H., Stoner, J.B. & Angell, M.E. (2010). Review of literature related to social, emotional, and behavioral adjustment of siblings of individuals with autism spectrum disorder.Journal of Developmental and Physical Disabilities, 22, 83-100.

Merin, N., Young, G.S., Ozonooff, S. & Rogers, S.J. (2007). Visual fixation patterns during reciprocal social interaction distinguish a subgroup of 6-month-old infants at risk for autism and comparison infants.Journal of Autism and Developmental Disorders, 37, 108-121.

Meyers, C. & Vipond, J. (2005). Play and social interactions between children with developmental disabilities and their siblings: A systematic literature review.Physical and Occupational Therapy in Pediatrics, 25, 81-103.

Moshier, M.S., York, T.P., Silberg, J.L. & Elsea, S.H. (2012). Siblings of individuals with Smith-Magenis syndrome: an investigation of the correlates of positive and negative behavioural traits. J Intellect Disabil Res. Oct;56(10):996-1007.

Mulroy, S., Robertson, L., Aiberti, K., Leonard, H. & Bower, C. (2008). The impact of having a sibling with an intellectual disability: Parental perspectives in two disorders. Journal of Intellectual Disability Research, 52, 216-229.

Naylor, A. & Prescott, P. (2004). Invisible children? The need for support groups for siblings of disabled children.British Journal of Special Education, 31, 199-206.

Neece, C.L., Blacher, J. & Baker, B.L. (2010). Impact on siblings of children with intellectual disability:The role of child behavior problems.American Journal on Intellectual and Developmental Disabilities, 115, 291-306.

Neely-Barnes, S. L., & Graff, J. C. (2011). Are there adverse consequences to being a sibling of a person with a disability? A propensity score analysis. Family Relations, 60, 331-341.

Nielsen, K.M., Mandleco, B., Roper, S.O., Cox, A., Dyches, T. & Marshall, E.S. (2012). Parental perceptions of sibling relationships in families rearing a child with a chronic condition. J Pediatr Nurs. 2012 Feb;27(1):34-43.

O'Brien, I., Duffy, A. & Nicholl, H. (2009). Impact of childhood chronic illnesses on siblings: a literature review. Br J Nurs. Dec 10-2010 Jan 13;18(22):1358, 1360-5.

O'Haver, J., Moore, I.M., Insel, K.C., Reed, P.G., Melnyk, B.M. & Lavoie, M. (2010). Parental perceptions of risk and protective factors associated with the adaptation of siblings of children with cystic fibrosis. Pediatr Nurs. Nov-Dec;36(6):284-91.

Opperman, S. & Alant, E. (2003). The coping responses of the adolescent siblings of children with severe disabilities. Disability and Rehabilitation, 25, 441-454

Orfus, M. & Howe, N. (2008). Stress appraisal and coping in siblings of children with special needs. Exceptionality Education Canada, 18, 166-181.

Orsmond, G., Kuo, H.Y. & Seltzer, M.M. (2009). Siblings of individuals with an autism spectrum disorder: Sibling relationships and wellbeing in adolescence and adulthood.Autism, 13, 59-80.

Orsmond, G. & Seltzer, M. (2007). Siblings of individuals with autism or Down syndrome: Effect on adult lives. Journal of Intellectual Disability Research, 51, 682-696.

Orsmond, G. & Seltzer, M. (2007). Siblings of individuals with autism spectrum disorders across the life course.Mental Retardation and Developmental Disabilities, 13, 313-320.

Orsmond, G. & Seltzer, M. (2009). Adolescent siblings of individuals with autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders, 39, 1053-1065.

Orsmond, G. & Seltzer, M. (2000). Experiences of siblings of children with physical disabilities: An empirical investigation. Disability and Rehabilitation, 22, 399-408.

Orsmond, G. & Seltzer, M. (2000). Brothers and sisters of adults with mental retardation: gendered nature of the sibling relationship. American Journal of Mental Retardation, 105, 486-508.

Petalas, M., Hastings, R., Nash, S., Dowey, A. & Reilly, D. (2009). “I like that he always shows who he is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder. International Journal of Disability Development and Education, 56, 381-399.

Petalas, M., Hastings, R., Nash, S., Lloyd, T. & Dowey, A. (2009). Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism. Autism, 13, 471-483.

Pilowsky, T., Yirmiya, N., Doppelt, O., Gross-Tsur, V. & Shalev, R.S. (2004).Social and emotional adjustment of siblings of children with autism.Journal of Child Psychology and Psychiatry, 45, 855-865.

Pit-Ten Cate, I.M. & Loots, G.M.P. (2000). Experiences of siblings of children with physical disabilities: An empirical investigation. Disability and Rehabilitation, 22, 399-408.

Platt, C., Roper, S.O., Mandleco, B. & Freeborn, D. (2014). Nurs Res. Jul-Aug;63(4):235-42.

Pompeo, M.N. (2009). When your “problem” becomes mine: Adult female siblings’ perspectives of having a brother with a disability.Exceptionality Education International, 19, 50-62.

Prchal, A. & Landolt, M.A. (2012). How siblings of pediatric cancer patiens experience the first time after diagnosis: a qualitative study. Cancer Nurs. Mar-Apr;35(2):133-40.

Presmanes, A.G., Walden, T.A., Stone, W.L. & Yoder, P.J. (2007). Effects of different attentional cues on responding to joint attention in younger siblings of children with autism spectrum disorders.Journal of Autism and Developmental Disorders, 37,133-144.

Quintero, N. & McIntyre, L.L. (2010). Sibling adjustment and maternal well-being: An examination of families with and without a child with autism spectrum disorder. Focus on Autism and Developmental Disabilities, 25, 37-46.

Raghuraman, R.S. (2008). The emotional well-being of older siblings of children who are deaf or hard of hearing and older siblings of children with typical hearing.The Volta Review, 108, 5-35.

Rao, P. A., & Beidel, D. (2009). The impact of children with high functioning autism on parental stress, sibling adjustment, and family functioning.Behavior Modification, 33, 437-451.

Rawson, H. (2009). ‘I’m going to be here long after you’re gone’- sibling perspectives of the future.British Journal of Learning Disabilities, 38, 225-238.

Read. J., Kinali, M., Muntoni, F., Weaver, T. & Garralda, M.E. (2011). Siblings of young people with Duchenne muscular dystrophy - a qualitative study of impact and coping. Eur J Paediatr Neurol. Jan;15(1):21-8

Read, J., Kinali, M., Muntoni, F. & Garralda, M.E. (2010). Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy. Eur J Paediatr Neurol. Jul;14(4):340-8.

Reagon, K.A., Higbee, T.S. & Endicott, K. (2006). Teaching pretend play skills to a student with autism using video modeling with a sibling asmodel and play partner.Education and Treatment of Children, 29, 517-528.

Regehr, K. & Feldman, M. (2009).Parent-selected interventions for infants at-risk for autism spectrum disorders and their affected siblings.Behavioral Interventions, 24, 237-248.

Rimmerman, A. & Raif, R. (2001). Involvement with and role perception toward an adult sibling with and without mental retardation.Journal of Rehabilitation, 67, 10-15.

Rivers, J. & Stoneman, Z. (2008). Child temperaments differential parenting, and the sibling relationships of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 38, 1740-1750.

Rivers, J. & Stoneman, Z. (2003). Sibling relationships when a child has autism: maternal stress and support coping. Journal of Autism and Developmental Disorders, 33, 383-396.

Rogers, S. J. (2009). What are infant siblings teaching us about autism in infancy?Autism Research, 2. 125-137.

Ross, P. & Cuskelly, M. (2006). Adjustment, sibling problems, and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31, 77-86.

Rossiter, L. & Sharpe, D. (2001). The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies, 10, 65-84.

Rozga, A., Hutman, T., Young, G.S., Rogers, S., Ozonoff, S., Dapretto, M. & Sigman, M. (2011). Behavioral profiles of affected and unaffected siblings of children with autism: Contribution of measures of mother-infant interaction and nonverbal.Journal of Autism and Developmental Disorders.Advance online publication.DOI: 10.1007/s10803-010-1051-6.

Sage, K.D. & Jegatheesan, B. (2010). Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell.Journal of Intellectual and Developmental Disability, 35, 92-103.

Schmid, R., Spiessl, H. & Cording, C. (2005). The situation of siblings of mentally ill people. Fortschr Neurol Psychiatr. Dec;73(12):736-49.

Schuntermann, P. (2007). The sibling experience: growing up with a child who has pervasive developmental disorder or mental retardation. May-Jun;15(3):93-108.

Seltzer, M. M., Greenberg, J. S., Orsmond, G. I. & Lounds, J. (2005). Life course studies of siblings of individuals with disabilities.Mental Retardation, 43, 354-359.

Sharpe, D. & Rossiter, L. (2002). Siblings of children with chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27, 699-710.

Silver, E.J. & Frolinger-Graham, M.J. (2000). Brief report: Psychological symptoms in healthy female siblings of adolescents with and without chronic conditions. Journal of Pediatric Psychology, 25, 279-284.

Simeonsson, R.J. & McHale, S.J. (2009). Review: Research on handiapped children: Sibling relationships. Child: Care Health and Development. 7, 153-171.

Sleeman, F., Northam, E.A., Crouch, W. & Cameron, F.J. (2010). Psychological adjustment of well siblings of children with Type 1 diabetes. Diabet Med. Sep;27(9):1084-7.

Smith, A.J., Brown, R.T., Bunke, B., Blount. R.L. & Christophersen, E. (2002). Pyschosocial adjustment and peer competence of siblings of children with attention-deficit/hyperactivity disorder.Journal of Attention Disorders, 5, 165-177.

Smith, E. & Cascella, P.W. (2007). Ratings of communication competence by siblings of persons with Down syndrome. Education and Training in Developmental Disorders, 42, 182-189.

Smith, L.O. & Elder, J.H. (2010). Sibling and family environments of persons with autism spectrum disorder: A review of the literature.Journal of Child and Adolescent Pediatric Nursing, 23, 189-195.

Smith, T. & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism.Journal on Developmental Disabilities, 11, 77-88

Stalker, K. & Connors, C. (2004).Children’s perceptions off their disabled siblings: ‘She’s different but it’s normal for us.’ Children and Society, 18, 218-230.

Stoneman, Z. (2001). Supporting positive sibling relationships during childhood. Mental Retardation and Developmental Disabilities Research, 7, 134-142.

Stoneman, Z. (2005).Siblings of children with disabilities: Research themes. Mental Retardation, 43, 339-350.

Stormshak, E.A., Bellatini, C. & Bierman, K.J. (2009). The quality of sibling relationships and the development of social competence and behavioral control in aggressive children.Developmental Psychology. 32, 79-89.

Swift, E.E., Taylor, G.H., Kaugars, R.S., Drotar, D., Yeats, K.O., Wade, S.L. & Stancin, T. (2003). Sibling relationships and behavior after pediatric traoumatic brain injury. Developmental and Behavioral Rehabilitation, 24, 24-31.

Tattersall, H.J. & Young, A.M. (2003). Exploring the impact on hearing children of having a deaf sibling.Deafness and Education International, 5, 108-122.

Taylor, J.L., Greenberg, J.S., Seltzer, M. & Floyd, F.J. (2008). Siblings of adults with mild intellectual deficits or mental illness: Differential life outcomes. Journal of Family Psychology, 6, 905-914.

Taylor, V., Fuggle, P. & Charman, T. (2001). Well sibling psychological adjustment to chronic physical disorder in a sibling:How important is maternal awareness of their illness attitudes and perceptions?Journal of Child Psychology and Psychiatry, 42, 953-962.

Tekin, E. & Kircaali-Iftar, G. (2002). Comparison of the effectiveness and efficiency of two response promoting procedures delivered by sibling tutors.Mental Retardation and Developmental Disabilities, 37, 283-299.

Trent, A., Kaiser, A.P. & Wolery, M. (2005). The use of responsive interaction strategies by siblings.Topics in Early Childhood Special Education, 25, 107-118.

Trent-Stainbrook, A., Kaiser, A.P. & Frey, J.R. (2007). Older siblings’ use of responsive interaction strategies and effects on their younger siblings with Down syndrome.Journal of Early Intervention, 29, 273-289.

Tsao, L.L. & McCabe, H. (2010). Why won’t he play with me: Sibling Interactions.Young Exceptional Children, 13, 25-36.

Tsao, L.L. & Odom, S.L. (2006). Sibling-mediated social interaction intervention for young children with autism.Topics in Early Childhood Special Education, 26, 106-123.

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Vatne, I., Bahr, D., Kanavin Ø. & Nyhus, L. (2014). She Came out of mum’s Tummy the Wrong way” (Mis) Conceptions Among Siblings of Children with Rare Disorders. J Genet Counsel DOI 10.1007/s10897-014-9757-9.

Vermaes, I.P., van Susante, A.M. & van Bakel, H.J. (2012). Psychological functioning of siblings in families of children with chronic health conditions: a meta-analysis. J Pediatr Psychol. Mar;37(2):166-84.

Verte, S., Hebbrecht, H., & Roeyers, H. (2006). Psychological adjustment of siblings of children who are deaf or hard of hearing. The Volta Review, 106, 89-110.

Verte, S., Roeyres, H. & Buysse, A. (2003). Behavioral problems, social competence, and self-concept in siblings of children with autism. Child: Care Health and Development, 29, 193-205.

Weiss, K., Schiaffino, K. & Ilowite, N. (2001). Predictors of sibling relationship characteristics in youth with juvenile chronic arthritis. Children’s Healthcare, 30, 67-77.

Williams, P. D., Piamjariyakul, U., Graff, J. C., & Stanton, A. (2010). Developmental Disabilities: Effects on well-siblings.Issues in Comprehensive Pediatric Nursing, 33, 39-55.

Williams, P. D., Williams, A. R., Graff, J. C., Hanson, S., Stanton, A., Hafeman, C., … Sanders, S. (2003). A community based intervention for siblings and parents of children with chronic illness or disability: The ISEE study. Journal of Pediatrics, 143, 386- 393.

Williams, P. D., Williams, A. R., Graff, J. C., Hanson, S., Stanton, A., Hafeman, C., … Sanders, S. (2002). Interrelationships among variables affective well siblings and mothers in families of children with a chronic illness or disability. Journal of Behavioral Medicine, 25, 411-424.

Wong, D., Maybery, M., Bishop, D. V. M., Maley, A. & Hallmeyer, J. (2006). Profiles of the executive function in parents and siblings of children with autism spectrum disorders. Genes, Brain, and Behavior, 5, 561-576.

Yirmiya, N., Pilowsky, T., Feldman, R., Baron-Cohen, S. & Sigman, M. (2006). The development of siblings of children with autism at 4 and 14 months: Social engagement, communication, and cognition.Journal of Child Psychology and Psychiatry, 47, 511-523.

Opinnäytetyöt ja muut julkaisut

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Hames, Annette; McCaffrey, Monica; McCaffrey, Brendan (eds.)(2005). Special brothers and sisters: stories and tips for siblings of children with a disability or serious illness.

Hermikoski, Laura & Koffert, Heidi. (2016). Sinut on nähty! Fysioterapeuttien kokemuksia sisarusten huomioimisesta osana lasten vaativaa lääkinnällistä kuntoutusta . JAMK.

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Ilomäki, Lotta.(2010). Erilaiset sisarukset: tapaustutkimus kahden sisaruksen sosiokulttuurisesta todellisuudesta perheessä, jossa on erityislapsi.

Inna, Saara. (2014). Sirpaleista koottu - sisaruksen suru ja siitä selviytyminen sisaruksen itsemurhan jälkeen. Pro Gradu -tutkielma. Tampereen Yliopisto.

Kaulio, Pia. (2008). Terveen sisaren syyllisyys.

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McHugh, Mary. (2003) Special siblings: growing up with someone with a disability.

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Miskala, Heidi. (2010). Sisarussuhteetja vanhemmuus ylivilkkaan lapsen perheessä. Pro Gradu -tutkielma. Jyväskylän Yliopisto.

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